Most parents of toddlers are concerned about their sleep habits and sense of smell, but heart failure is not usually heart failure.
When their two-year-old son came in, it certainly wasn’t on Thomas’ radar Sudden cardiac arrest In the middle of the night at their Illinois house.
His parents ran to the room when the child woke up screaming.
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“It was amazing to hear him scream. He was usually a good night’s sleep, so it was a horrifying cry,” Stephanie Thomas told Fox News Digital.
“When I entered his room he kept screaming and then he was face-to-face with his crib.”
Stephanie and Christomas’ two-year-old son suffered a sudden cardiac arrest in the middle of the night at his Illinois home. (Stefanie Thomas/OSF Healthcare)
At first, Thomas thought their son had night horror, so Stephanie – Clinical Nutritionist At OSF Healthcare Children’s Hospital in Illinois – hands on his back and sitting next to his crib, trying to calm him down.
“When he finally settled down, I could feel his breathing slow halt,” she recalled. “I picked him up from his crib and put him on the floor. He wasn’t responding so I felt my pulse and started CPR.”
“I was petrified and confused about the seemingly healthy two-year-old being in this situation.”
“I was petrified and confused about what I had at first glance Healthy 2 year old I was in this situation. ”
When Stephanie played CPR, her husband, Chris, was called 911.
Emergency responders rushed the boy to OSF Healthcare. After 11 days of testing, he was diagnosed. Brugada syndromevery rare heart conditions that can cause sudden cardiac arrest and death.
After 11 days of testing, the 2-year-old was diagnosed with Bulgada syndrome, a very rare heart disease that can cause sudden cardiac arrest and death. (Stefanie Thomas/OSF Healthcare)
There may be signs of Bulgada syndrome, such as fainting or death, but this condition is often not detected until cardiac arrest occurs.
Thomas’ son had a similar incident about a month before his cardiac arrest, but they now think it was his first episode.
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“He woke up in the middle of the night with a horrifying cry, making it difficult to get out of breath and settle down,” recalled Stephanie. “It was a short period of time and once he settled, he looked ‘normal’. We thought it was the night terror. ”
Both Thomas was tested as Brugada syndrome is often inherited Genetic abnormalitiesHowever, their son syndrome was determined to be “mosaic defects.” This is when there are two or more genetically distinct sets of cells in the body.
“Our son looks healthy and healthy over 99% of the time until his body and medicines get into arrhythmia that he can’t control,” Stephanie Thomas told Fox News Digital. (Stefanie Thomas/OSF Healthcare)
The OSF team implanted young boys with an EV-ICD (extravascular defibrillation agent) located outside the blood vessels of the heart. It is designed to detect and fix any Abnormal heart rhythm.
This was the first time a device was implanted into a child at such a young age, the hospital noted in a press release.
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Thomas’ son since the first episode I’m hospitalized Six more times. Whenever an abnormal heart rhythm is detected, EV-ICD brings a “life-saving shock” to the boy’s mind.
“Our son looks healthy and healthy over 99% of the time until his body and medicines get into arrhythmia that he can’t control,” Stephanie told Fox News Digital. “In these cases, he’s shocked by the ICD.”
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The boy has been readmitted to the hospital seven times since his first discharge due to arrhythmia and drug titration, his mother added.
Sunita Ferns, MD, a pediatric electrophysiologist at OSF Healthcare St. Francis Medical Center, who is treating Thomas’ son, said her young patient is currently “married with heart disease.”
Parents said it can be difficult to navigate episodes with a two-year-old who doesn’t understand what’s going on. (Stefanie Thomas/OSF Healthcare)
“We constantly monitor these devices. If we see arrhythmia in the background, we can provide him with other techniques despite the medication he is taking,” Dr. Ferns said in an OSF press release.
“Ablation techniques help to correct the substrate, the tissue that causes poor rhythms.”
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To control his arrhythmia, the boy also takes compound interest Oral medication Every six hours, he will take for the rest of his life.
Parents said it can be difficult to navigate episodes with a two-year-old who doesn’t understand what’s going on.
Thomases now aims to raise awareness of the importance of receiving CPR training, warn signs and pay attention to creating emergency plans. (Stefanie Thomas/OSF Healthcare)
“The most difficult thing is when he says, ‘I can’t use an elephant blanket, so I can’t use it because I shocked it,” Stephanie said. “He’s making these connections between being shocked and the objects and places around him.”
There are certain triggers for a boy’s arrhythmia, and Thomas has learned things like low-grade fever and slight illnesses. Like a cold.
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“It’s important that we keep him as healthy as possible, which could challenge him to have an active 2-year-old and 4-year-old,” Stephanie said.
“We will make sure he stays up to date with him and us. Vaccines for the whole family. We will do our best to keep the temperature tight. ”
“It’s important that we keep him as healthy as possible.”
Thomases now aims to raise awareness of the importance of receiving CPR training, warn signs and pay attention to creating emergency plans.
As a medical employee, Stephanie has maintained her Basic Life Support (BLS) certification for over a decade.
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“I’ve always said I work together Doctors and nursesSo I felt this was something I would never use, but the night my son had cardiac arrested, the doctor and nurse weren’t at my house, so it was up to me. ”
